This moment — this one right here

Thank you thank you thank you for the outpouring of love and support over the past few weeks. I am blown away by the number of people who have reached out to let us know they’ve been touched in some way by my blog/our story. It’s particularly meaningful to hear from friends, acquaintances, and even total strangers about the specific and personal ways in which witnessing and reading about our experiences has made a difference to them, whether it be vowing to spend more time with family, saying “f—it; let’s get that second dog,” seizing opportunities for adventure/travel, or simply being present and appreciating how special and valuable each moment with their loved ones is.

For a little while, I’d been struggling to understand why following my blog has been so impactful to so many people because, to me, it’s simply my unglamorous, messy, ordinary life. One comment in particular, though, helped me understand why so many people relate to our situation. Davida, my former boss’s wife, put into words very clearly how the blog has touched her. Her words capture so well what I hope my legacy (such as it is) will be: “You have helped me to appreciate the importance of this moment — this one right here,” she wrote, “as it unfolds and regardless of what it contains — by showing how it’s done and by writing about your process and your experiences with such delicate sensibility and brilliant specificity.” So thanks again to Davida and to many others for making me feel like the difficult work of being open and vulnerable throughout this experience has made a difference to you. Knowing that my cancer diagnosis brought Mike into my life makes the terrible parts of this worthwhile, and the knowledge that sharing my experiences honestly has had a positive impact on others is the icing on the cake. 

img_2066

Our friend Amanda made and hand-delivered this stunning flower arrangement. Thank you SO much, Amanda! Check out her lovely creations on Instagram @bloomthereitis.

Special thanks also to members of the Northeastern University Physical Therapy class of 2009. This wonderful group of Mike’s classmates reached out to ask if they could make a charitable contribution that would help other people experiencing a cancer diagnosis. They’ve generously raised $2,500, to be split between the Cancer Support Community-Benjamin Center and the Simms/Mann Center for Integrative Oncology, two organizations that have provided immeasurable help, resources and support for us over the past 6 years. In a particularly touching and meaningful gesture, John Tran, a member of this class, has also offered to contribute the funds needed to keep iamnaomisbrain.com up and running in perpetuity. We are deeply grateful.

We continue to fill our days with the little things: reading together, listening to records in our little sitting room, watching a few TV shows and movies, going on walks together and with friends and family. We’ve had quite a few appointments this week and last with members of my new hospice team and have basked in the company of and laughter with friends, after all the medical talk.

Advertisements

One thought on “This moment — this one right here

  1. Naomi,
    Thank you for continuing to give us a glimpse into the very difficult choices you have been faced with during this journey. Every one of your posts is a reminder to live life to the fullest and enjoy every moment we get in this life with our loved ones, friends, and doing the things in life that bring us joy. You always write so beautifully and honestly about the struggles that a young adult with cancer goes through. The strength and poise that you exude in your posts always leave me in awe.

    We met at the CSC years ago and while we haven’t been in touch, I have been following your journey and you have been in my thoughts. Wishing you peace and most of all, as many meaningful moments with Mike and your loved ones as possible.

    With love,
    Sharishta

Share your thoughts!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s